Kidneys everywhere

This is the best picture I’ve seen of PKD kidneys. I’ve seen people pictures once they ere taken out but this gives a much better visual on jut how much smooshing of other organs is going on. I’m lucky in that while I have a belly I’m not quite looking highly pregnant and I can find cute clothes. Some may think that being concerned about my outfits is frivolous in light of  hoping to not need a transplant or dialysis but looking cute helps me feel better. There is so much going on that I can’t conrol that being able to throw on an adorable dress gives me something.

I wonder how many people have sexual issues with PKD. I’m on a couple of FB groups but I can’t recall any discussions on it. I don’t even know if nephrologist bring it up but thy should. I know I was thrown by how much experimentation it took for us to adapt to my ever growing belly along with the sensitivity it brings.  There are so many day to day things that are affected like breathing, gas, pain that can be constant and intermittent. It’s a mistake to focus on the kidneys and the clinical to the exclusion of life experiences.

Now I’m wondering where to find info about menopause and PKD.